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Yorkshire’s Brain Tumour Charity (“YBTC”, “we”, “us”, or “our”) is committed to protecting your personal information and being transparent about how we use it.
This Privacy Policy explains how we collect, use, store, and share your information — both online (via our website: www.yorksbtc.org.uk) and offline (e.g., in our support services).

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1. Information we collect

We may collect personal information from you in the following ways:

• When you contact us, register for support, sign up for an event, request information, or make a donation

• Through referrals from statutory health services (such as NHS hospital teams, GPs, or clinical nurse specialists), usually with your agreement

• When you interact with our website (including via cookies — see our Cookies Policy for details)

The personal information we collect may include:

• Name, address, email address, phone number

• Details about your diagnosis or support needs (only where relevant to the services we provide)

• Payment and transaction details if you make a donation or purchase

We may also collect non-personal information such as IP addresses, browser type, and aggregated website usage data for analytics.

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2. How we use your information

We process your personal information under one or more lawful bases under UK data protection law, including legitimate interests, vital interests, legal obligation, or consent (where applicable).

We use your information to:

• Provide the services and support you have requested

• Coordinate joined-up support between YBTC staff and trained peer support volunteers

• Respond to referrals from statutory health services and provide updates back to them to ensure care is joined-up (unless you have requested otherwise)

• Process donations and payments

• Send you updates about our work, events, and ways to get involved (where you have opted in)

• Improve our services, website, and communications

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3. Sharing your information

We will never sell your personal information. We may share it in the following ways:

a) With statutory health services:

• We work in partnership with statutory health providers (e.g., NHS hospital teams, GPs, and clinical nurse specialists) to coordinate your care and support

• This may include sharing relevant information with those services and receiving updates from them

• We will only share what is necessary and will respect any reasonable requests you make to limit this sharing, unless there is a legal requirement or safeguarding concern

b) Within Yorkshire’s Brain Tumour Charity:

• Your information may be shared internally between our staff team and trained peer support volunteers to ensure continuity and coordination of support

• All staff and volunteers are bound by this Privacy Policy and our confidentiality requirements. They are provided with access to free data protection training and are expected to complete it

c) With trusted third-party providers:

• We may share your information with suppliers who help us deliver our services (e.g., IT providers, event organisers), but only under contracts requiring them to keep your information secure and only use it for the agreed purpose

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4. How we protect your information

We take appropriate organisational and technical measures to protect your personal information from unauthorised access, alteration, disclosure, or loss.

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5. Your rights

You have the right to:

• Access the personal information we hold about you

• Ask us to correct or delete your personal information

• Withdraw consent where we rely on it

• Object to certain types of processing

• Complain to the Information Commissioner’s Office (ICO) if you are unhappy with how we handle your data (www.ico.org.uk)

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6. Changes to this policy

We may update this policy from time to time. The latest version will always be available on our website.

Contact us:
Yorkshire’s Brain Tumour Charity
31 Otley Road, Headingley, Leeds, LS6 3AA
Email: info@yorksbtc.org.uk
Phone: 0113 340 0111

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Read our Cookies Policy here