Brain tumours don't discriminate, so neither do we. Our purpose is to support anyone impacted by a primary brain tumour across Yorkshire.
Our vision is a world where brain tumours are cured.
Our mission is to support patients and their loved ones through the devastation a primary brain tumour diagnosis can bring, making sure they have someone to turn to at any stage of their journey, while funding innovative research across Yorkshire to find better treatments and ultimately a cure.
Why we are here
Around 11,000 new cases of primary brain tumours are diagnosed in the UK every year, 15 each week in Yorkshire.
Treatments have been relatively unchanged for nearly 50 years and brain tumours are now the biggest cancer killer of people aged 40 and under in the UK.
We want to change these statistics and make life easier for those who are affected, by:
* Providing emotional and psychological support for brain tumour patients, their carers and loved one through our telephone support line, online and email support, counselling for adults & children, 1-2-1 wellbeing walks, check in & chat peer support and bereavement support
* Issuing grants and financial assistance to brain tumour patients to support financial hardship or reduce social isolation, funding bridging grants for families awaiting a paediatric diagnosis and signposting for benefits and welfare advice
* Supporting hospital teams across Leeds, Hull and Sheffield, providing equipment, supplies and the little extras that make a big difference
* Low-grade paediatric patients agreed care pathway
* Supporting patients and their loved ones through providing practical advice across a range of online resources, our online support directory and book distribution
* Providing accessible support groups through regular meet ups, social get togethers, our drop-in cafes, group wellbeing walks and family events
* Seed funding research of new projects and proof of concept studies across Yorkshire
* Enabling patients and family members to have a voice through our Patient Advisory Group, representing views and experiences to inform the future