About Us
Research
Support
Giving & Events
Shop
News
Contact Us
Donate
Text Size
Contact Us
19
May
Our Next Event
Bereavement Support Group
Date:
19 May
Time:
07:00 PM
Venue:
Online
About Us
Our Background
Charity Origins
YBTC Impact Report 2019
YBTC Impact Report 2020
The Good Business Charter
Our Team
Join Our Team
Meet Our Team
Meet Our Trustees
Meet Our Patrons & Celebrity Ambassadors
Meet Our Ambassadors
Meet Our Volunteers
Current Funds
Safeguarding
Research
Research
Latest Research News!
Background to research
Current Research
Previous Research Stories
Yorkshire Brain Tumour Symposium
Donating tissue for research
Get Involved
We want to hear from you!
Patient Advisory Group
YBTC Research Advisory Committee
Clinical Trials
Support
Support Services
Drop-in Cafés
Self-Referrals
Professional referrals
Support for Children
Support for Carers & Loved Ones
Support for Patients
Bereavement Support
Our Bereavement Support
Bereavement Information
Supporting a bereaved person
Helping children
Living loss or anticipatory loss
Bereavement - References
Other Resources
Signs & Symptoms of a brain tumour
Mental Health & Wellbeing
Managing anxiety before a scan
Returning to work following a diagnosis
Travelling abroad after a diagnosis
Radiotherapy Masks
The Brain Tumour Patients' Charter of Rights
Support Where You Live
Barnsley
Bassetlaw
Bradford & Craven
Calderdale
Doncaster
East Riding
Hull
Kirklees
Leeds
North East Lincolnshire
North Lincolnshire
North Yorkshire
Rotherham
Sheffield
Wakefield
York
Yorkshire-wide Services
Giving & Events
Loving Fundraising
Fundraise for YBTC
Interactive Online Games
Jam Jar Campaign
Create a Crown Day
Weekly Win-Win Lottery
YBTC Funds
Loving Events
View All Events!
YBTC Active Events
Corporate & Team Building Events
Arts & Crafts Fair
Big Bike Challenge 2022
Easter Party
Golf Day
Great North Run
London Marathon
Miles in May
North Yorkshire Coastal Ramble
Run for All Leeds 10k
Skydive
Step Into September
Total Warrior
Loving Shopping
No 31
YBTC Online Shop
Amazon Smile
YBTC Wishlist
eBay
Loving Giving
Donate Online
Regular Giving
Remember a loved one
Charity Stars
Leaving a gift in your will
Text to donate
Online shopping
Other Ways To Donate
Volunteer for YBTC
Loving Business
Business Connections
How Your Business Can Help
Loving Recycling
Ellie's Fund Recycling
Fundraising Resources
View Resources
Shop
News
Contact Us
News
Ben's story
Ben's story
Mon 19 July
Ben shares his story of being diagnosed with a GBM4 in 2019.
"It was back in May 2019 when I woke up one morning for work and I had the most painful headache. I took two painkillers for it but that didn’t touch it. I went to see the out-of-hours doctor as with work I couldn’t get in to see my own GP. The doctor I saw put it down as a migraine and gave me medication for that.
"The medication didn’t work, so I went to see the out-of-hours doctors based at Barnsley Hospital. I saw the same doctor about four times and he just put it down to migraines. I thought ‘enough is enough’ and booked myself in to see the optician. He referred me to the eye clinic so on the 13
th
of May I went, and I thought I might have had a stroke as he was trying to get through to the stroke team. He couldn’t, so he booked me in for an MRI scan the next day.
"But I didn’t make that appointment because just before, I went to my friend’s house. I went funny and all hot – I could hear them speaking to me but couldn’t really answer. My sister came and took me and my friend straight to Barnsley Hospital where they did a CT scan and found a bleed on my brain. At this point they said I couldn’t eat or drink."
"Before I went to Weston Park in Sheffield, I was on the neuro unit for a couple of days. They did a scan on the 16
th
of May when I was told they’d found two large lesions on the right side of my brain which would need to be operated on. I should have had it done the next day but it got put back to the following Tuesday. The surgeon was happy that he removed it all, but the type of tumour (GBM4) is hard to remove as some cells are left behind.
"When the results came back I was with my mum Jennifer. My eyes filled up. I took a deep breath and asked the question: how long, and what treatment was out there. They said it would grow back within one to two years.
"It came back within the year. During the first lockdown my treatment was put on hold. When I had my next scan I was told it had grown back. Then I was put onto PCV – I had three cycles of that with no effect. My tumour had grown a bit more and there was a new spot on the left side of my brain. I went onto Carboplantin and had three cycles of that, which also didn’t work. My treatment was stopped in January this year.
"They have stayed in contact with me at Weston Park Hospital. I’ve been feeling well, and don’t class myself as poorly anymore. They gave me a scan last week. I’m waiting to see what it shows and where to from there. I’ll see if they’ll refer me for a trial up in Cambridge. I’ve been told that there are programmes up in Newcastle and down in London that my type of tumour isn’t compatible for. I’ve just got to keep doing what I’m doing, keep the positivity as it helps a long way.
"I’ve met a lot of amazing people along the way, sadly some of whom lost the battle to this horrible cancer. Thanks for letting me share my story with the good people of Yorkshire and the rest of the UK, it means a lot."
Thank you Ben for sharing your story with us.
To contact our team please call us on 0113 511 8111 or email
support@yorksbtc.org.uk
To find out more about the ways we can support you on your journey, go to
yorksbtc.org.uk/Loving-Support/
More like this:
Emma's story
Ellie's story
Since 2003 you've helped us raise:
4,264,819.31
Helpful Links
Our Support
Donate
Events
Latest News
Registered Charity No. 1095931
Contact Us
Office: 0113 340 0111
Email:
info@yorksbtc.org.uk
Support Line: 0113 511 8111
Open 7 days, 9am - 10pm
Find Us
Yorkshire's Brain Tumour Charity
31 Otley Road,
Headingley,
Leeds,
LS6 3AA
Yorkshire's Brain Tumour Charity, Registered Charity Address 31 Otley Road, Headingley, Leeds, LS6 3AA.
© Yorkshire's Brain Tumour Charity. Registered Charity No. 1095931
Privacy Policy
|
Cookie Policy
|
Refund Policy
|
Fundraising Promise
|
Complaints Policy
|
Covid-19
by pixelbuilders.com |
digital agency leeds
Make a Donation